Tag Archives: weariness

Finally, Sunshine

The Tuesday before Thanksgiving, on my last day of being 52 years old, I went to both Kroger and Smallmart– because even before the pandemic supply chain issues, in my small town, neither store ever had everything you needed. (I told shoppers in the dairy section yesterday my new joke: Where is the buttermilk? Not at Kroger!)

In Smallmart (I know–I don’t like the nickname either), there was the usual trouble on the spice aisle.

The spice aisle in the grocery store, particularly near a holiday, is a hullabaloo, a team-building exercise–and, sometimes, a missionary field. People who have never bought sage desperately search for it; those who left their shopping lists at home murmur, “Do I need celery salt or celery seed?” and frantic bakers rifle around for the last vial of McCormick Pure Vanilla.

So, if I encounter someone steering glassy-eyed at the rows of bottles and packets, I always ask, “What are you searching for?” And I stop and help for a minute. (Sometimes, I negotiate: “You find the pink Himalayan salt for me, and I will find the paprika for you.”)

Tuesday, there was a short older woman with a nearly empty shopping cart staring up at the spices. She said she was searching for food coloring, so I joined the quest.

I found it on the top shelf. It wasn’t McCormick–it was disguised in an odd little Great Value box. She said, “I only need one color,” so I grabbed a tall bottle of red, thinking she planned to make red velvet cake for Thanksgiving.

She corrected my assumption: “I need yellow.” I told her there wasn’t a single tall bottle of yellow. She replied, “Well, then, I will need three boxes,” and I handed them to her. (I briefly considered opening them to fill one with just yellow.)

Her shopping companion rounded the corner, and the woman reported that there were no single bottles, so she planned to get three boxes, although she didn’t like the price. “We might have to go to Kroger,” she added.

“Oh, don’t go to Kroger!” I told her.

“Did you just come from there? Is it busy?” she asked.

I told her it was and suggested we look in the cupcake section because sometimes things hide there.

We wandered down the aisle–there was yellow icing but no food coloring. She resigned herself to Kroger.

I opened my wallet and folded a bill the way my grandmother always had. “Here,” I said, explaining, “I had a hard time for a long time.”

She got teary-eyed and started thanking Jesus. And we both stood there in the spice aisle, each of us thanking God.


The words I spoke echoed in my head as I shopped for cat food and eggs and buttermilk. I heard them as I exchanged pleasantries with former students–and again as I loaded my car.

“Had.”

Our family had a traumatic 21 years. Our marriage had a difficult six. I had lost my granddaughter, my father, and my husband–the three of them dying horrible deaths.

“Had.”

I focused on the word as I drove home. Something about having said it struck me–maybe because it was on the eve of my birthday, just before a chronological break, maybe because there might be hope for 53 to be a peaceful year.

“Had.”


That afternoon, my elder daughter dropped by so I could see my two-month-old grandson, The Cutest Baby in the World. We decided to take him to see my aunt, who had yet to meet him. At eighty, she reminds me more of my grandmother every time I see her, and in a small way, it was like introducing the baby to Grandma.

They took to one another–I have photographic proof. The baby lay in my aunt’s lap with placid satisfaction, his eyes the calmest I have ever seen them. He was satisfied to be with her, surrounded by portraits of his great-great-great-grandparents and photos of the great-greats.

Then, my uncle came home (he’d been, of course, at Kroger). He put the groceries down and came to meet the baby, who stood on April’s lap. (The baby loves to stand.)

Uncle B— approached the baby from a distance, like you would a strange scared dog. He stood with his hands on his knees, considering baby P—, calling a gentle, “Hey, there!”

And P— stood staring at back. The baby was transfixed.

It was a long moment. A two-month-old and an 84-year-old, considering one another. From across the room, I took pictures–my uncle’s back, the baby’s intense gaze, April’s smiling face.

And I thought for a moment that it should be my dad hunched over his moccasin-clad great-grandson; that Greg should be in the room, in the armchair beside me; that both of these men deserved to meet and hold this little boy, this bright sunshine after two decades of drenching rain.

And I just left it, grateful for the people in the room, all of us quietly delighting in the sunshine.

The Land of Before: The Thirtieth Year of Marriage

December 2, 2018

Last night, I called my younger daughter, who is 1,001 miles away at college.  She said that she was in the common room with her suitemates, and they were bonding, and I was glad because I think, in general, common rooms should be used more than they are.

Somehow, they got to talking about abortion and babies and whether you would keep a baby who you knew was destined to die. Abby had to tell her new friends that, actually, that happened to her family–that we lived that two years ago.

Until Abby wrote about Stephanie Grace’s death for English 120, I didn’t how much it destroyed her. Of course, I knew April was heartbroken, lost, and bereaved, and I knew of my own helplessness, but I did not know how deeply everything–comforting her sister, shoring up her mom, all while still keeping perfect grades–had impacted Abby.


That’s the thing, the stunning thing: some of us carry tragic loads that seem too heavy to lift even once–and yet we must carry them evermore.


I am in a group of women, anencephaly mothers and grandmothers, hundreds upon hundreds of them who have lost these precious babies, who are lifting their precious loads, and who are walking on in pain.

Before Christmas, I didn’t think I could walk on any longer.

It all seems so unfair. We should have a two-year-old granddaughter romping through this house. We should be worried about keeping fragile Christmas ornaments out of reach, and instead, there’s no baby–even her mother is gone. There’s just sadness, resignation, and anger.

With losses like those we have accrued, it does not matter if you can pick yourself up–because everyone must emerge from despair. If one person remains in the pit, then the other family members find themselves staying near the edge–there is, after all, an intrinsic moral imperative: you tend to the hurt. You try to carry them out–and, if you can’t, you remain nearby. In a family, there is no TRUE moving on unless everyone is ready to walk.


I cannot believe how long my little family has lived with rage, for rage is–in some ways–the absence of love. But rage has within it an angry love–a love that says, “None of this should have happened, and it happened while you were with me, and you dared to stand beside me and endure hell and hard things. You stayed there with me, you propped me up, and I am mad that we had to endure this hell–but every single time I see you, I think of the hell.

That’s what’s no one’s really honest about. That’s what no one says: if your husband holds your hand through two miscarriages, and if he’s there during two failed adoptions, and if you’re there during his three cancer battles, and if you’re both there during your granddaughter’s devastating death, then it will not matter how many roses one of you someday summons the energy to buy. It will not matter how many candlelit dinners you eat together. It will not matter how many times you reach for his hand in the car.

The sad anger is always there.


I understand that God can do a work. What I am even more fully aware of is that God has not yet done a work, unless you consider the marvel that we are both in this house, that he is sitting beside me on the sofa as I write this. There is still a resilience despite the losses stacked like cordwood.


In this edge-of-despair, often angry world, sometimes I feel far from God. I know I feel far from my indoctrination–I joke with friends that I need reindoctrination, I need to go back to those early days of adulthood, days where anticipation was great, when there was joy in keeping a house and fulfillment in the suppertime smiles of my husband and children.


What you must never, ever say, the thought you must fight with ferocity–the one that you must always keep captive is this: I can’t believe this is my life.


When I got married, I intended to be a frugal homeschooling quiverfull mom with six children–everyone on one pew at church.  Instead, it sometimes feels like the only true harvest I have is sorrow–buckets and buckets of sorrow, and it just seems like God has forgotten us.

But I know that, despite everything I feel, God is there because Mr. Chalk told me so. As did Lou Turk. And Mrs. Mullis. I know that at the bottom of the ocean, He is there. On the top of the highest mountain, He is there–and so He has to be in my sad and angry house, but I can’t find Him here.

And so I get tired, And I want to raze the house.


Rationally, I want to destroy the house. To give up, take a cat and dog and flee–because there’s no way that God could have built this. Rationally, there’s no way the “tapestry” they talk about these Christian memes and movies can actually be something that works for me.

All I see is ugliness.

All I see is destruction.

All I know is the silence of the joyless house that I sit in for eight hours a day.


It is only natural to think, how can this be God???

I don’t know because I’m not a theologian, but I think it can be God because I think that God, in the hard times, can teach us the meaning of the word sustain.

He can teach us what it means to be held up.

He can teach us what it means to be propped when there’s just no more energy for propping. When there is absolutely nothing left that we can do for ourselves, that is where God shows up–in our weakness, in our frailty, when we can be neither kind nor patient, when we cannot be anything positive at all.

But we hear ourselves at work or the grocery store, saying, “Good morning, Sarah, that’s a pretty shirt.” “Hi, Whitney, how are you today?” starting the day’s cycle of kindness, the process of reaching out, of being God to others–in this gentle patching, we lose a little bit of the pain. A little bit of that rage. We can forget the hurt temporarily and see, instead, God–I see Him in the student giving me  the candy craft he has made–marshmallows on a stick–embarrassed at 15, but still reaching out, being Jesus to a sad, tired teacher.


Ultimately, no matter the emotional shape of our house, no matter how close we are to the edge of the pit, we are all still together.


August 10, 2021, our 30th anniversary 

Since that day in May–the day of Greg’s brain bleed, the day of the strokes, the day the woosh of the pit was the only sound I heard, when we were all, once again, engulfed in it–I have told myself, On August 10th, I am going to pull in his driveway and say, “Let’s go be glad you’re alive.”  


I thought, really, it wouldn’t happen after thirteen months of living apart.

I thought it would be too big, remembering the land of before. That land is a place we no longer know–and it’s a place few people here have ever seen us be. We have spent two decades in a land of burst and wasted balloons with little and faint music; we have only remnants of ribbon.


Tonight, my younger daughter and I were in her bathroom–she was twirling in a little black sundress and her favorite cardigan, twisting her hair into mini buns, a preparatory post-pandemic collegiate dress-up. We were prepping for one last trip to her favorite Goodwill, forty miles away. “Let’s take Dad,” she proclaimed.


Abby had collected stories for the car–the eight-year-old she tutors who hates “baby TV” (Paw Patrol), her roommate’s cactus scandal (the cleaning service threw away $250 worth of his plants), vegan adventures (recipe plans involving artificial eggs). She was opinionated and funny, just like we’d raised her, and we were already missing her, although she was right there.


On the way home, we went to Burger King–I got a real Whopper;  Abby, an Impossible Whopper, and Greg, cheese sticks.

Abby’s vegan Whopper was a little burnt, and I rolled down the windows while Greg made Dad jokes: “It’d be impossible for me to eat that Whopper.” Abby ignored us, munching happily, saying, “It makes me feel included.”


We whizzed down the highway, the sun setting pink in the distance, the sky cloudless through the pine trees. 

Abby, her mouth full, mumbled something about deer.

“Deer?” I asked.

“Did you see all the deer in that field? There were like a ton of deer. Like twelve. There were mothers and babies. So many deer.”

We hadn’t seen them. Not even one.


We told her the story together, one of the foundational stories of us, of our family in the land  before the pit:

On the night we got engaged, while driving home, I saw two deer standing in the dark at the roadside. 

April, when she came to us in foster care, had the last name of her legal father: Roe–meaning deer.

And when we found out we were pregnant with you–when I was desperately afraid–we drove the next day to the fertility doctor in Woodstock, in Town Center, and as we left the parking lot, there stood a deer in the parking lot, looking at us, then leaping away.

“Abby, it was near a highway like the one in Jacksonville. Near a mall. Lots of stores. There shouldn’t have been a deer,” Greg said.

And we marveled as we rode in silence, remembering the deer.

 

Cancer Survivors, Please Take Note:

You are allowed to want:

A clean table.

Fresh sheets.

A few things

(modest household items)

from Pier One

On sale. With coupon.

 

(You are also allowed,

in a lifetime,

One stainless steel trashcan

and two Lowes clearance appliances.)

 

You can want, desperately,

your aunt’s second-hand sofa

with its tufted pillows.

And Lindt Christmas peppermint truffles

at the after-New-Years Walgreens price.

 

Permission granted! Dance with true joy

when your brother gives you

a seventeen-year-old fishing truck

(your only vehicle with A/C).

 

(Even now, there are tears: you possess A/C.)

 

Don’t dare want

the smiling husband at the amphitheater concert.

Forget the gurgling grandchild, alive in your arms.

(We understood your wanting her last year,

but, really?, this year, too?)

 

Accept your fate. Shut up. Sit down.

 

Even after sixteen years–

character building via financial destruction,

$208,000 in medical bills,

a new Nissan’s worth of eyedrops.

 

You cannot desire relief.

 

It is not his fault. Not your fault.

You can’t blame anyone.

 

Stop all that tacky wanting.

 

Like what you have.

Take what you get.

 

And just shut up about the car.

 

There’s no driving away from this.

 

 

 

 

 

 

Stillbirth: One Month On

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Memorial flowers still absorb our silent cross-eyed stares.

(What is this? What is this, even?)

Sympathy cards pile on her dresser.

Crisp handwriting and broken words.

(There are no words when there is no life.)

So much stolen that the words go, too.

Meals feralize. We eat all. Or nothing.

Books cannot distract. (The crossed eyes, taut, refuse.)

TV–never compelling–now even worse.

Prayers surround us, unanswered:broken steppingstones.

A few more could not hurt. But they (may) change nothing.

We cannot touch each other.

The ramrod anger stiffens so; there is no bend or ease:

No reaching arm, nor hand of comfort.

Father, mother, daughters–none can hold our own hard sorrow.

(Do not, please, prop yours unthinkingly here even for an instant.)

Work lies like forgotten knitting. One day we craft. The next–indolence.

(It is absurd how little truly matters. The world lies: to claim value in the worthless.)

Our teeth unbrushed. Our unkempt, haphazard hair trimmed in the dim bathroom.

(Who can brave the Southern beauty shop?)

No rest is found in darkness. Nightmares abound, constant and grim.

(Except one sweet reprieve in a garden sculptured with stark metalloid poppies.)

Even the most obtuse pity our brokenness. Impelled to help, nevertheless

Sensing the ridiculous in the grand gesture, so worthless with its words.

This known, they are simple and quick. (Unrelenting.)

Repeatedly they push the stuck and damaged buttons of our broken hearts.

Daily, students press their warm faces to mine; insistent touchstones.

(The whirring cameras document their dogged reaching beyond my statuary.)

Kind questions and hugs in the acquaintance-filled grocery store,

Like spider webs flung over the Grand Canyon–

perhaps (someday) shall lead us back to the known familiar.

 

And we may find the people we were before this devastation.

Before the raging. Before such sorrow.

 

Before we fully knew.

 

 

Mothering (Gray Day) Warriors

If you get the wrong mother, hush.

Never speak of it.

(Maybe she didn’t want you, either.)

 

When you see your classmate with a quiet, lip-sticked Mother

(who is not dancing with the policemen and perhaps never has)

do not want that muted version.

If, at age eight, you play Monopoly at Cynthia’s house and

enjoy brownies, milk, or actual conversation with her Mother

(who framed Cynthia’s artclass hydrangea and hung it in the living room,

shocking you with the power of maternal display)

want what you have instead and be grateful.

When you hear the spectacular anthology of things your mother did

while you were young and insistently ill–your illness precipitating hers

(do not blame yourself, but do not forget that you were the root,

the first pull on her sanity, the initiate seed. That was you.)

accept her warranted beatification without question.

When she now calls at 3:00 AM because her feet are cold and she needs socks

or at noon when her dentures are lost, or at midnight to talk about her sick cat

(you woke her once upon a time, and please do not forget

all of those library trips, which were at least three miles round trip)

listen to her politely. Be kind and good.

(She cannot, after all, be blamed. Tragedy is its own jagged fault.)

If you cannot buy enthusiastic flowers or calligraphed cards

with words of praise and pleasantry on Mother’s Day

(it would be easy to–for one day–feign a right celebration)

do not write the honest words

of hardwood, worthy truth:

She did (every day) the best she could.

(Though you know not how that is not Most Purely Beautiful.)

 

Why not acknowledge that she did (and does) her muddled best

with only the sloppy constant tool of inadequacy and pain?

And chanced to create children who withstand and see and acknowledge and survive

Life. Abundant tragedy. Galore.

(Isn’t it cruel that the world demands a day of silent Hallmark honor

And yellow roses of such warrior offspring?)

The better reward may be

that these resile often-hollow brittled children invite her

to sit on their sofas; bring her cold drinks; answer their phones

rebelliously delighting in the sound of her mothering voice.

They bring long-wrought absolution in

Hopeful cups of over-iced tea; salvation and forgiveness.

Acquitting even the weary gray-bed weeks when, thinking to hide her pain,

she shifted it instead unknowingly to their young clean backs.

 

Society demands plasticine homage.

But she will gratefully sip

even the most lukewarm thimbled water

in mute and reverent celebration of her best.

 

 

 

 

 

 

Christ: Who Strengthens Me

12976754_920310534764208_2244250461583658971_oOn my classroom white board, there is a list of things I cannot do. Currently, it reads: “Carve into a mountain; jog to Blackshear (nine miles); cross the monkey bars; roller skate; be nice to Abby about her eyelashes” (Ab added that last one).  It’s a silly list, but it’s meant to remind my students of two things: that works of nonfiction may not always be truthful (mountain carving; jogging barefoot through the snow carrying a violin) and that we all have things we cannot do.

An honest and fearless list would, of course, be much longer. It would include more negatives: I can’t help you with a loose tooth or a nosebleed–ever.  I can’t be kind when I’m really, really tired.  I can’t repeat an answer more than three times nicely. (I start spelling each word in thundering tones.) I can’t remember names when I’m anxious. But lately, the biggest Can’t remains this: I can’t cope well with my daughter’s pregnancy, nor with the fact that her anencephalic daughter, Stephanie Grace, is expected to die soon after birth.

I generally fare well in the struggles we face. I always have. From my husband’s leukemia and our family’s cross-country move to students’ in-class seizures, I have handled past crises calmly. But this pregnancy, after a series of smaller family crises in the fall, has just done me in. I’m ready to turn in any medal I won in the Cancer Caregiver Olympics or the Child of an Alcoholic Triathlons–because in the Parent of an Unwed Pregnant Daughter Speed Trials, I’m not doing as well as I’d like.

I suppose that I expected more of myself because I’ve always done well with my pregnant students. I recognize their stammering and hesitant, “Can we talk?” and, if I’m among the first adults they tell, I manage to make the interaction survivable for both of us. I want my student mothers to remember adult support, not condemnation. Logically, I also want that for my own daughter as well.

I just can’t find my footing–I can’t put the pieces together. I can do some things–buy maternity clothes, accompany April to doctor’s visits, get excited when I feel the baby kick, make jokes about the baby’s stubborn streak, and even talk with some equanimity about the plans for her funeral. Anything pragmatic about this pregnancy, I have a pretty good handle on–if I haven’t figured out the logistics, I have a fairly adequate general plan. But in every emotional aspect of this pregnancy, I am inadequate. Not enough.

I couldn’t even be happy before it was time to be sad. 

April, at 24 weeks, is not struggling. If the time with her daughter is limited to Stephanie Grace’s time en utero, then April will make the most of it. She wants maternity pictures, plaster casts of the baby’s footprints, and an adorable layette. She’s letting the baby listen to her favorite songs, singing to her, and making certain that she knows she is loved.

There is nothing, nothing that I would rather do than curl up beside April and read Let’s Get a Pup, Said Kate loudly to my granddaughter, to cheerfully chirp, “What a brand new one?/With the wrapping still on?” and to let that baby learn my voice. But I can’t stop sobbing long enough to read a book. I can’t talk for more than one minute about maternity pictures or help April shop for the right dress. I can’t stay in the baby section of any store for more than thirty seconds before the air leaves the room. I can’t share in my daughter’s fragile joy because I am still gathering the pieces of my broken heart. 

There is no instant fix for this. I’ve been trying to tell myself, “I can do all things through Christ who strengthens me,” but I’m finding that, for me, that verse has been stripped to something akin to “I can live another day, and perhaps be kind to people.” I can’t do much more than that right now. I cannot be all that my daughter needs me to be. 

12959564_10208178114863308_601819068_oBut I want you to know, my grandbaby now has a layette. A former student’s mother took April to lunch last week; afterwards they shopped in Belk’s, where April selected a pink dress and bonnet set for Stephanie Grace.  The student’s great aunt, whom April has never met, has also crocheted the baby a blanket.

My daughter has her professional maternity pictures. A former coworker volunteered to spend the last day of her spring break doing a beach photo shoot. In addition to having pictures to cherish, April will always remember the flower crown she wore, the wind whipping her dress, and the nearby wedding that was close enough to hear.

She has a lovely, long maternity dress. One of her elementary school classmates, Caitlyn, loaned April the dress she’d used for her own cotton-field maternity shots. When we went to fetch the dress, Caitlyn sat holding her newborn, whom we’d thought would grow up alongside Stephanie Grace. I marveled at our peace in the room.

She has freshly cut and curled hair. Our hairdresser, whom I have known for over thirty years, made sure that April felt special and looked beautiful for her photos, refusing payment. “She said it was her gift to me,” April explained.

Yesterday afternoon, as April was dropped off after the photo session, we got to sneak a peek at some of the shots. She beamed peacefully onscreen, totally relaxed, trusting God and enjoying the moment. She was beautiful and radiant and loved. She’d accomplished one mission, ticked one item off the To Do list; her pregnancy was, in at least one way, normal and fun.

My part in all this? Well, I had made the phone call for the hair appointment and suggested a pink bow. That’s it. Because I could not do any more, my friends did Much More. They enthused and rejoiced and clucked over April. They smiled and laughed and chatted. They made everything better. 

12968095_920310824764179_7958268002363552032_oLast night, as I was once again wishing my failures away, I thought about that verse in a different light. What if the words “in others” were included? “I can do all things through Christ [in others] who strengthens me” seems a bit more reflective of the way I’m living now. The funny texts, sweet cards, and late night phone calls from friends strengthen me. The Bible devotional a friend gave me months ago feeds me daily. My husband’s patience with me and my daughters’ understanding show me God’s grace. No one is mad that I cannot do what they can; they are simply picking up my load and going forward, then looking back to make sure I’m still straggling along.

This is the only way I will survive this journey: through the Christ in others, ministering to me. Though I wish I could lead the pack and plow confidently ahead, in accepting my current weakness, I am seeing other’s strengths.

I may be lagging behind, lost in “What ifs” and exhausted tears, but I’m still at least journeying toward the finish line that I don’t want to reach. I don’t want to go there; none of us do. But with our friends we are moving forward; through their love, we are all moving onward.

Myself included.

 

 

Inconnaissable

 

We are in the life raft–

Having walked an unexpected plank.

Fallen. Shattered. Piled close.

 

Keelhauling seems kinder.

(Barnacles across our backs

Better than this heartbreak.)

We have no oxygen, at any rate.

 

Months mast-climbing now wasted;

the crow’s nest meaningless.

A formidable, sandless shore

(Still, certainly, with its treasures)

Awaits us now, black-rocked.

We dare not look or think too long.

 

Decades of gathered ballast

Bilge-hidden for such a day

(Godcan/Godloves/Godhears)

Discharge, trickle, and sustain.

 

The cannons boom. “Certainly Lethal.”

Foremast, mainmast, mizzenmast:

All are tangled. Torn, destroyed.

And the wind will show no mercy.

 

135 days of Unknown await.

 

Surely we will again sleep and breathe and eat.

But the waves are high; our vessel weak.

 

And the voyage is so long.

 

 

 

 

 

 

 

 

 

 

The Gleam of the Now

10575320_1675980529318413_6993199641154948756_oToday, I awoke to a Facebook post. It said simply, “It’s a nice day for a white wedding,” and my heart just broke. The bride, Shelby, is young, beautiful, tough–and motherless.

Like most of the children of the Seattle bone marrow transplant patients, her life has been full of continued medical crises, financial hardship, and forced independence. The kids who ran amok in Seattle Cancer Care Alliance’s Pete Gross House in 2001 are between 16 and 24 now; most are partially orphaned, and all are fairly unjaded stoics. They left fairy tales and hopes of happy endings behind before they were out of toddlerhood. They spent hours in hospital waiting rooms, eating stale Cheetos and sipping warm Sprite while their pincushion parents, dragging bags of TPN, stared at Lake Union and mustered half-hearted hopes for better days.

For cancer patients who are also parents of young children, the goal most often mentioned is their child’s wedding day. The walk down the aisle is the holy grail, especially if they have daughters, as we do. Nurses say things like, “You are going to walk your daughter down the aisle. You’ll see” because when you are living from one misery-filled moment to the next, you can’t even see a day when food will taste right again. A happy wedding day fifteen years hence is an almost impotent goal when your crystal ball currently contains only the day’s methotrexate.  So it is the nurses who speak of future years, while the patients content themselves to survive the days.

And now, 906 miles away, Tammy’s daughter is getting married. The day the nurses conjured is now concrete: March 11, 2016–and her dad, who was on the bone marrow transplant ward with my husband, is (as predicted) fine. But his caregiver, his wife–the one who fundraised and moved the family cross country, and entertained us all from the instant she got there–succumbed herself. To cancer.

Words like ironic and cruel and phrases like twist of fate don’t do justice to such heartache, to fifteen years spent watching first one parent, then another, fight for their lives. Yes, these children gain strength and fortitude, that’s true–but they also are always waiting for the other shoe to drop. For the PET scan to find a nodule, for the biopsy to be positive, for the graft versus host to flare. They walk the cancer tightrope right behind their wary parents–and when a parent passes away, they walk again, alone. Inching forward, toes curled, lips pursed, chins set, continuing their journey.

Fortunately, children learn a lot while curled up in a hospital bed beside a sick parent. The power of a smile. The fun in a quiet game of cards. The pleasure of a Veggie Tales video shown for the fiftieth time. They learn to lie still and hold Daddy’s hand and look at the trees in the arboretum. They learn to hold the Now and move forward some. They learn that time is both slow and fast: they live through both the longest and shortest of days.

I don’t know much about Shelby’s wedding–who wore what, who toasted whom, what hors d’oeuvres were served–but I do know this: the sparkle in her eyes testifies to the happiness in her heart and the joy of the day. Surely it was bittersweet. There has been so much lost. But in her eyes, I can see the gleam of the Now, and it is beautiful.

More than most, Shelby knows that things scar and fade, batter and become. She’s seen much, but her eyes in the photo dance.

Her mother would be so proud.

 

 

 

 

 

 

 

On the Waving of the Checkered Flag

“We were laughing and living, drinking and wishing, /And thinking as that checkered flag was waving, Sure would like to stay in Talladega.” –Eric Church, Talladega

It was a late summer evening, and although it was technically too hot to, I had cooked. My younger daughter, Abby, liked the anchor of a family meal, and my older daughter April’s boyfriend liked my cooking. Long dinners were our Thing for those last several weeks before September made us into the school-year flotsam and jetsam that we so often became.
Our family dinners were a marvel to me. My alcoholic, bipolar mother had seldom cooked. Food–whether it was greasy, lukewarm roast beef or the more standard Burger King Whopper Jr.—was swallowed quickly and our back-to-bedroom escapes were made. Dad, who dubbed himself “Fate’s Whipping Boy,” ate late and alone at the Formica-topped bar in the kitchen. Whichever child chose to emerge and join him would be treated to sardonic stories of his gray day as they swiveled on the sticky faux-leather bar stools. There was nothing warm and Ingalls-y about our mealtime; no passed potatoes, no humorous stories, and very little daily minutiae was shared with nodding and clucking adults.
I exulted in the fact that my daughters expected family dinners. Our table was the first piece of furniture we bought as newlyweds; the chairs were given one by one as Christmas gifts by relatives. The twenty-four year-old chairs, saggy, scuffed, and stained, were no longer prizes; the tabletop, faded and worn from the thousands of meals we’d enjoyed, was no longer fit for the Haverty’s showroom. My now-adult brothers, on separate occasions, each reverently stroked the tabletop and said, “You can almost see the stories that were told here,” in recognition of my treasure.
On Sunday nights, I’d holler, “Who wants what next week?” and each girl knew she could count on one favorite food—Chicken Parmesan, gluten-free pizza, chocolate-chip pancakes—at the end of each weekday. April’s boyfriend, who was hundreds of miles from his mother’s home cooking, occasionally joined in, politely requesting fried okra or red velvet cake. He would smuggle the leftover slices home past his thieving roommates, who especially favored the walnut cream cheese frosting.
The days that ended at the table were days that were bookended by laughter and long talks. We would talk about Marxism, basketball, and Eric Church—one night, as if to show just how weird their mother was, April and Abby allowed me to explain why “Talladega” was the best song ever written, discussing it line by line. Everyone laughed at my sentimental tears over “the summer before the real world started.”

The girls would tell stories of broken arms and field trips, of Camp Winshape and hikes and horseback rides. I’d clear the table as they prattled on, Abby enjoying her traditional York Peppermint Patties and milk while Greg snuck a little ice cream.
So it was this customary evening. We had eaten well and laughed hard, remembering how when we’d asked young April her dolls’ names, she would cackle, “Rubbish and Trash.” We’d recounted her cross-country airplane trip alone at age six where she’d poured Sprite–quite deliberately—down the pants of her middle-aged seatmate, a woman who’d called her a chicken. Dinner was endless, and as we sat there afterwards, I heard a clear voice within me say, “You will never have this again.

I froze. I knew the voice.

In 2001, when I’d heard Greg was in the hospital after a routine doctor’s appointment revealed iffy blood test results, as I desperately said, “Not leukemia” to myself over and over, I heard the voice say, “It is leukemia, but I will perform a miracle of peace.” And these words proved true.
To hear that voice so clearly fourteen years later, clearly and certainly bringing sad news from nowhere –I can’t emphasize enough the nowhere—shook me. I looked at each of the four of them, chortling at the latest story; I took in the dishes and the lighting and the way their smiles shone. They were all so happy. There was joy in the room, hilarity even. It had been a good meal, a great time, and, evidently, the last one, ever.

As I sat there, forty-five, haggard, prematurely gray, having endured much, I can clearly recall a desperate grasping within me, an urge to fight, to say no. I wanted to resist whatever torture was ahead, and I wanted to begin immediately. Post haste. To stand and fight and claim good things–for surely, having lost so much, we deserve to enjoy good suppers. How could that be too much to ask? For a minute, I was like my former students, who now as young new mothers, are trying to perfectly order their children’s and families’ worlds. I felt myself reverting to a time when I naively thought that I could change and save things.
But I was only there a moment.
I acknowledged the voice. I told it, “Well, then, I’m going to enjoy tonight.” I refilled their glasses, grabbed dessert, and we sat long and laughed much. So much. I watched their faces, held their hands, marveled at the blessings they were.

It was a truly beautiful night: we were so rich.

There is no explaining how quickly everything has changed. A break up, an unplanned rebound pregnancy; one move, then another. We were five, and we are now three. And supper at the table is more than this remnant can bear. My husband dines on Frosted Flakes in our bedroom, seeking his solace in Barney, Andy, and Aunt Bea; my younger daughter nibbles frozen chicken nuggets while copying AP biology notes; I eat the pork loin that I made, but no one wanted, as I play online Scrabble with Charles, a stranger in Maryland. My elder daughter is living in a maternity home two hours away; her ex-boyfriend is reduced to terse texts about items I need to mail back to him. There is nothing left of the Ingalls family here.

In the kitchen cabinet, there remain several small bottles of red food coloring. I used to buy Kroger’s entire stock since in a small town, hoarding can sometimes become a necessity. I doubt, however, that I will make red velvet cakes again. They belong in a time that has left me, with people who have as well.
I only had an hour to say my farewell—an hour after dinner in which I was allowed to look, alone, at all that God had given me, to hold it close, to see its beauty, and to bid it goodbye. At the time, I didn’t know whether we would face a car wreck, a third cancer, or an unexpected death. I knew only that the pain was coming.
I thank God that He allowed me one last look at all that joy. For what joy it was.

(What Joy!
It Was.)

Desum

image

Three days ago I had a dog.

Four weeks ago, I had a daughter.

One and twenty one. Pup. Adult.

Known, Quantifiable.

I could press my hand against his flop and brindled muzzle;

Her half-filled cereal bowl (so much wasted milk) sat beside my sink.

His snore a benediction, my nightly au revoir.

The final thing I heard.

Her face–alight from the flicker of a favorite movie–

The final thing I saw.

 

Now, both are gone.

A quick stripping, a sudden wrench, a dark smash-and-grab

(A stealing from all sides.)

Simple tearing and ripping.

No benediction.

Powerless against their absence.

Two lives I thought to help to save.

Two lives I loved.

Gone, wholly.

And I, again, in mine.

Present. In all this absence.